I wish there was an express line at the hospital for frequent visitors who know to have their insurance card and photo I.D. out and ready. This isn’t my first time at the rodeo…

10:01 a.m.

I’m only an hour into the gastric emptying study at the hospital and i’m already ready to bolt. Three hours to go. Anyone have tips to pass the time faster? I’ve already attempted to play “I Spy… The hot doctor” with myself but unfortunately most gastro doctors don’t look like Dr. MCDreamy - Patrick Dempsey or Dr. mcSteamy- Eric Dane

I have a long day ahead of me at St. Vincent’s hospital undergoing the gastric emptying study. This is not my first time at the rodeo, I performed this test prior to my total abdominal colectomy surgery. I will say this, the microwave egg white omelette laced in radioactive medicine that will be traced through my G.I. Track don’t taste any bet ore delicious the second time around. the purpose of today’s study is to see if my digestive tract is intermittently shutting down or works at an abnormally slow rate daily. Based on prior studies like the horse pill Smart Pill, my system sporadically fails. Fingers crossed all goes well today and I am not stuck in the hospital too long!

I have a long day ahead of me at St. Vincent’s hospital undergoing the gastric emptying study. This is not my first time at the rodeo, I performed this test prior to my total abdominal colectomy surgery. I will say this, the microwave egg white omelette laced in radioactive medicine that will be traced through my G.I. Track don’t taste any bet ore delicious the second time around. the purpose of today’s study is to see if my digestive tract is intermittently shutting down or works at an abnormally slow rate daily. Based on prior studies like the horse pill Smart Pill, my system sporadically fails. Fingers crossed all goes well today and I am not stuck in the hospital too long!

(via pictureperfectbodywerkit)

Thoughts on Coloplast ileostomy bags?

At my appointment with my stoma nurse at Mass. General Hospital last week I found out I am allergic to not only Holister ileostomy bags, but Convatec pouches, too. My rash wasn’t a fungal infection as I thought, but another allergic reaction to material Convatec bags are made of! So now I am going to try the Coloplast brand : ) Is anyone else using Coloplast bags? If so, do you like Coloplast and which type do you use?

CHRISTMAS IN FEBRUARY

Confession: Opening up boxes filled with ostomy pouch samples is almost as exciting as unwrapping Christmas presents. 

(Please ignore my pajamas and pale complexion, I just got out of the hospital. If you look closely at my wrist you can see my white hospital I.D. bracelet: )

Never let a hospitalization- even on the weekend- interfere with your plans of having a good time. Remain positive and demand lots of pain killers.

Never let a hospitalization- even on the weekend- interfere with your plans of having a good time. Remain positive and demand lots of pain killers.

Home sweet home. I am very much looking forward to the day I forget what floors and suites of the hospital my doctors offices are located on.

Home sweet home. I am very much looking forward to the day I forget what floors and suites of the hospital my doctors offices are located on.

After a long day cooped up in the hospital my father and I snuck out to catch a basketball game - don’t tell the doctors! Go Celtics!

After a long day cooped up in the hospital my father and I snuck out to catch a basketball game - don’t tell the doctors! Go Celtics!

To the guy who just downed an entire bag of peanut M&Ms in the doctor’s waiting room before hopping on the scale, you are a bad ass.

I spent 80 minutes showering, applying makeup, fixing my hair, and selecting a cute outfit for today’s doctors appointments out

And my first appointment with my stoma nurse lasted all of 15 minutes. I feel like a cheap date. All I’d like is for her to put as much time and effort into this appointment as I did.

(I saw my stoma nurse at Mass. General before meeting with my GI team to go over my recent blockages and digestive system failures because I my terribly itchy, red, and ugly rash has developed again on the skin around my stoma. At times it oozes, causing my skin to become wet, and my bag slips off my skin. Originally we thought it was a fungal infection, and treated it like so until after 3 months no amount of anti-fungal creams, powders, or pills cleared it up. My doctors said I was actually allergic to one of the materials the Holister bag I was using was made of, and simply by changing my brand of bags to Convatec my rash disappeared! However, now the rash is back and as itchy, wet and annoying as before. I’ve been given new anti-fungal medication, and if it does not improve things I will switch my brand of bags again. Fingers crossed it doesn’t come to this, I love the pediatric ostomy bags I use from Convatec- they have koala bears on them!)

I hereby pledge to smile every day despite having a stoma as well as state my refusal to wear a hospital gown even during my frequent hospitalizations.

Because being sick is not an excuse to be anything less than fabulous.

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